Overall, we aim to [1] identify what is currently known regarding the diagnosis, treatment, and management of apathy in PD and [2] assess barriers and facilitators to the use of the knowledge currently available regarding the diagnosis, treatment, and management of apathy in PD.

  • We will recruit: Four focus groups with patients and caregivers (n= 4-6 people per focus group) to assess barriers and facilitators to diagnosis and management of apathy in PD.
  •  We will recruit: Four focus groups with specialist health care practitioners including: Neurologists, geriatricians, neuropsychiatrists, and multidisciplinary teams (nurses and social workers).

Inclusion Criteria

  • Diagnosis of idiopathic PD made by the U.K Brain Bank Criteria or diagnosis by a movement disorder specialist
  • Competency in English with no aphasia
  • Ability to provide informed consent.

Exclusion Criteria

  • Clinically significant apathy defined by Lille Apathy Rating Scale (or other relevant apathy scale)
  • Clinically significant depression (using the short form of the Geriatric Depression Scale, using a score of 9 or above)
  • Diagnosis of clinically significant cognitive impairment using the Mini-Cog and a score of less than 3

University of Calgary
CHREB ID 17-0669

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