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Participating in CaPRI is voluntary, confidential and free. All you would need to do is attend one study visit.

What would you have to do?

All you would need to do is attend one in person study visit that lasts about three to four hours and would include the following:

  • A questionnaire about your background and health
  • An assessment of your mood, memory and thinking
  • A blood draw
  • A motor exam (Parkinson’s & Parkinson Plus participants only)

The study visit would take place at the Heritage Medical Clinic at the Foothills Hospital Campus.

In addition, you would complete 3 follow-up phone or online questionnaires at 18 month intervals.

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Fill out the following form to learn more about participating in the CaPRI Registry

All fields marked with (*) are required.

Have you been diagnosed with Parkinson’s disease?*

I wish to be contacted to receive more information?*

Preferred method of contact* EmailPhone

Frequently Asked Questions

What is a participant registry?

It is a collection of information that will be used to advance the understanding and knowledge of Parkinson’s disease (PD). The purpose of the CaPRI Registry is to facilitate contact between ongoing research studies and participants who wish to contribute to the development and improvement of treatments for PD.

Who has access to my information?

Only authorized members of the research team will have access to the information collected in CaPRI.

How is the privacy of my information protected?

The collected information is stored in a secure electronic database that has been approved by Alberta Health Services and is in compliance with the Health Information Act.

Do I have to have Parkinson’s to participate?

No. While we do need people with Parkinson’s or Parkinson Plus, we ALSO need participants who do not have Parkinson’s or any other neurological disease to act as controls for the CaPRI registry. So family, friends, caregivers or anyone who is over 40 years old and is eligible to be a control is encouraged to participate.

What does my participation involve?

Participating in CaPRI is voluntary, confidential and free. All you would need to do is attend one in person study visit that lasts about three to four hours and then complete 3 follow-up (phone or online) questionnaires at 18 month intervals. You may withdraw from the registry at any time.

Where would I have to go for the study visit?

The study visit would take place at the Heritage Medical Clinic at the Foothills Hospital Campus.

What if I change my mind and no longer wish to participate in CaPRI?

Participating in CaPRI is completely voluntary and you have the right to withdraw at any time, for whatever reason, without risking loss of present or future care you would otherwise expect to receive.

What research studies are current available?

Check out the Research Studies page to see what studies are currently available

Can I choose which research studies I want ot participate in?

When someone contacts you about participating in a research project, you have the choice of deciding whether you want to participate in that project or not. The choice is entirely up to you and does not affect your ongoing care or level of treatment. You can continue to remain in the registry to be contacted for future projects that you are eligible for and might wish to participate in.

How do you get started?

Contact us to learn more about how you can get started.

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